Saturday, December 27, 2008

Quick update.

It's been a while since I have posted, and really, not much has changed. We managed to get through the holidays nicely....Ashton had a nice Christmas and Santa was good to him and his brother and sister. We completed his second week of treatment, minus one day for Christmas, and this week went much smoother than the first one. There was only one minor problem last week but it was easily fixed. Ashton threw up on Thursday night...we think he had too much of his liquid food....and he threw up his feeding tube. So, we had to pull it out and he got a new one the next day. It really wasn't a big deal, the only bad thing was Ashton was so happy to not have the tube in his nose for one whole night and was pretty bummed when he woke the next day from radiation or as we call it "his short nap" and found he had a new tube which is a teeny bit bigger then the old one. But, he's OK with it all now.

The dr. told us last Monday that his white blood cell count was really low. Normal is between 4 and 12 thousand and he was at 1.700. She said by this Monday he will most likely be at .500, so we need to be really careful and not be around anyone who is sick because if he gets a fever we have to go stay in the hospital for a few days. He is really tired now too and is going to bed around 6 or 6:30 on most nights. Other then that he isn't having too many terrible side effects as of yet. Of course we are all keeping our fingers crossed and hoping we have another smooth week coming up.

One other new piece of news is we have decided to hold off on Physical and occupational therapy for about a month. It was just too much for Ashton and he wasn't getting 100% of it all because of his being so tired. It just makes sense to wait and we know a lot of what to be doing ourselves so we can work with him. He is walking a lot more now, just holding one of our hands, and is improving all the time. Still a little wobbly but I'm thinking it won't be long and he will be on his own. He can climb on and off the couch by himself and just seeing him do that is so major for us. He really is a special guy.

I most likely won't be posting very often unless something happens that is important. So don't worry if you notice I'm not posting as much I have been. We are just so busy and day to day, things are mostly the same. Please keep Ashton in all your thoughts and prayers though...his battle is just beginning and he needs all the positive thoughts he can get still. Happy New Year!

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