A much needed update!

It has been so long since I've updated! Sorry for the huge ammount of time gone by. Ashton is doing so incredibly well and we are so excited for summer. He has been eating little bits here and there. He mostly likes sweet things but lately he has also tried taco meat and spanish rice. I think because these things have a lot of flavor, he likes them. He is still getting his regular formula feeds through the G tube, but its looking like it won't be for much longer. He sure is taking his time though, this eating stuff has definitely been on his own terms and he is taking baby steps with it. Whatever it takes though!

Ashton was given the opportunity to do a wish through the make a wish foundation. So, in 11 days, we're going to Disneyland!! We are so excited! This will be the first time we have flown down south to go to DL and it will be all of the kids first time in an airplane. Its going to be quite the adventure :)

Ashton is still doing Physical Therapy once a week and he is getting stronger and stronger. He still has a long way to go, but today we took him to "The white church" that he loves so much--Holy Cross, in Santa Cruz--and he was able to "run", more like trot, on the grass. He had been wanting to do that for so long, it was great to see him and how happy it made him. He is also loving riding on his trike and man is he fast. Thats one of his favorite things to do as well. He just goes and goes!

I can't remember if I mentioned this before, but we have decided to put Ashton in Pre-school next fall instead of Kindergarten. I feel he needs to make up for a bunch of lost time and I really want him to have the very best start going into school. He will be going to Baymonte Preschool, which is where his sister went, and I know he will have a great beginning to his many, many, school years.

For now though, we are going to remain busy just enjoying the summertime. We missed the whole season last year because most of our days were spent in the hospital. We have been playing outside, playing again with our weekly playgroup at the park, and Ashton has even started swimming in the pool again. This was a biggie because he was very afraid to get back in there, but thanks to our new neighbors and their little boy, Ashton took to it right away. It helps when you have a friend to swim with :) I feel like things are going so well sometimes that it just can't possibly be true. I have this dread that at any moment it can all be swept away again. I know this is normal anxiety, but that doesn't make it any easier. I get so worried anytime he throws up, which does still happen, just not very often. I worry its the tumor growing back, but then I remember that he is very sensitive to things, like his feeds, or when we try to stop the anti-nausea meds, and that it will take some time for him to adjust. His next MRI is scheduled for the end of July, I think the 27th but I'm not sure. I will update again before then and let everyone know.
Happy summer and I will let you know how the Make a Wish trip goes!