Tuesday, December 9, 2008

Motor cars, Trains, and Helicopters.

Ashton got to make another trip to toys r us today and I'm happy to say he was able to sit in the black escalade power wheels, or as he calls it, "the motor car," for quite a while. He was smiling the whole time. Pat stayed with him while I did some shopping and at one point I came upon him in the pink car...not sure, maybe his taste is changing :) But, I am so happy he was able to do that. He also had an appt. today with the physical therapist and he didn't call her a stupid lady once! He actually warmed up to her a teeny bit and was enjoying showing her his toys and playing with her. Later after she had left, Pat was helping him do some walking. They were coming to me and when I exclaimed "yeah, good job!" he said..."my walking is so stupid." He was referring to the way he takes his steps now, and how they are different then they were before.
That was sad but I just told him his walking was great, and it really is. Compared to a week ago, it is fantastic.

Pat's mom is in California. She is staying at her sisters house in Madera and can't come visit
until she is well, she caught some cold on the long train ride here. Pat is anxious to see her and she is anxious to see us. I hope she can stay with us for a while...she will be a lot of help and the kids love her.

I finally contacted Jacob's Heart today. I was having a really depressing moment and decided to call to see what support they offer. They have a support group for all the family and are actually having a Christmas party this Friday. We may go depending on the way Ashton feels. It will be nice to be around other families with similar circumstances. This Saturday we are all heading to a pretty big event called "fantasy flight 2008" It starts out at Yahoo, in Sunnyvale and they shuttle us all to Moffet Field. It is an event put on by the Cops Care Cancer Foundation, but is open to all families with children who are facing a life threatening illness. There are gifts for all the kids...siblings included and we hear Santa flies in on a Helicopter. We are all looking forward to this and maybe having a day full of fun and a little Christmas cheer.

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