Surgery Friday!

Ashton had his upper G.I. done this morning and it went really well. He did such a good job and it only took a few minutes to get all the info. they needed. They could see that there were no problems going on with his system, everything looked great. So, after he had the GI, we had a bunch of time to kill before we had a short exam with his doctor. The exam wasn't a "planned" one, I had some concerns that I wanted her to check, and everything was fine. But before we had that checkup, we got to go to the playroom and see some people that we haven't seen in a long time. It felt good to see them, like seeing old friends. I get a sense of comfort when I walk in the hospital.....Its strange because I am so glad to not be spending most of my time there anymore, but at the same time, there are memories and people who understand which makes it feel welcoming.

So, during Ashton's exam with the doctor, she let us know that Ashton could have his G surgery this Friday! I'm so happy! Besides the G tube, he will be getting his port removed. The only thing that wont happen is the Botox to the eye muscle. His eye doctor is out of town so he will just have that done with the next MRI, which is already scheduled for March 22nd. Ashton will need to stay overnight in the hospital for at least one night to make sure his new tube works well and all is ok. I'm so excited for these procedures. I have a feeling that this will help Ashton to want to eat on his own. Keep him in your thoughts everyone! Thank you!

The latest

Wow, it has been quite a while since I have updated! Not too much has been going on, just living a somewhat normal day to day life. Ashton continues to have Physical therapy and is doing so great! Just last Thursday he went up and down the stairs by himself, which is HUGE! Its amazing how far he has come in just the last few months.

We are waiting to hear some dates of up-coming procedures. First, the dr.s want him to have an upper GI, just to rule out any other reasons he may not want to eat...reasons besides the chemo. Once that is all taken care of, we are hoping to have his NG tube placed into his stomach, which is just called a G tube. This way he won't have the tube in his nose bothering him. The G tube is more permanent, but also temporary. While he is under he will actually have 3 procedures done. 1, the G tube. 2, have his port removed, yea!. And 3, get botox on the stronger muscle in his left eye. We are so looking forward to these procedures! We are planning to start him in preschool in April, with a bunch of visits in March, and we would love to have all of this completed by then. These are big steps forward for us!

Ashton has another hearing test coming up at the end of this month. We are hoping everything is still stable. His last eye appointment was a good one, he can see perfectly. He just needs to get his eye straight.

So, that's all for now. I will update once we get the date of surgery! I'm so happy he is doing so well!