Home and not feeling well.

Ashton got discharged Tuesday the 31st. We were in the hospital almost 2 weeks! During our stay his nausea was pretty much taken care of...he basically felt well most of the time. Since we have been home he has thrown up his NG tube twice, on Wednesday and Thursday. Wednesday I just went to Dominican, brought our own tube, and he was in and out in 20 minutes max. It still is a horribly uncomfortable thing for him to go through, but he did really well. Yesterday, on the other hand, was a nightmare. He woke feeling pretty bad but the feeling wore off by the time we had to go up to Stanford for a blood draw and hearing test--his hearing was perfect again and his labs were great...his white count is way up so we don't have to give him his daily shot anymore, for now. But, on the way home he threw up in the car. His tube came out and was gagging and gagging him, it was awlful. Good thing I was sitting in the back with him and caught most of it in his trusty "bucket". But, the tube was just hanging there and I didn't have anything sharp to cut it with. His eyes were bugging out and he was basically panicking as we were driving down Hwy 280. I made the decision to just put him through more discomfort and gently pull the tube out through his nose. I had to do this so slowly though to be careful not to hurt him, but of course the whole time he is thinking he is choking. Its terrible. But I got it out and then he was fine. We decided to just drive directly to Dominican again because he was in and out in such a short time the day before. Unfortunately, this wasn't the case last night. We waited 2 1/2 hours in the waiting room for a procedure that takes about 15 seconds. Once we got back the wait was another half hour to figure the tube out. They didn't have the right type of tube so Pat had to drive home and get one. It was a nightmare. Ashton went all that time with out his feeds, without his medication, and he should have been asleep in bed. Not to mention he sat in a waiting room full of sick people, ICK! I talked to his Dr. today and she told me I can bump up his medication to every four hours, and that on Monday we will be taught how to put the tube in ourselves. At this point, his nausea is the thing that is bugging him the most. Hopefully the fact that we can give him his medicine more frequently will be a great thing and that darn tube can stay in!! If his platelet counts rise by Monday he will be starting chemo again late next week. I will update again when I can...