MRI Today.

Wow, what a day. Ashton had his MRI today which was scheduled for 11:30, but when we got there we found out there was a mix up and it wasn't going to happen until 1pm. This actually worked out really well because he needed a good amount of fluids because he was severely dehydrated. On Monday we got the OK to take out the feeding tube to see how he would do on his own. Turned out, he wasn't ready at all. He didn't eat a thing for two days and barely drank anything but sips of water throughout the day. Last night we started noticing he was acting more sleepy then usual and this morning he was pretty lethargic. Good thing we were going up to Stanford today! He had his labs done first and his dr. knew that he hadn't been drinking, so he was set up to get normal saline before the MRI. After he got the liquids we got the results of the lab draw and his glucose was pretty low. He ended up getting a second round of fluids with sugar. Poor guy....he tanked so fast. His dr. was actually surprised at how quick he got dehydrated and mentioned that he is pretty fragile. So, he got his feeding tube back in when he was under anesthesia today and we are going back on his normal feed schedule. We will try again in 6 to 8 weeks, but basically he has definitely got to be drinking A LOT before it comes out again. This means he will have the tube during our Disneyland trip, but that's ok. In a way its comforting to know he will be getting all the nutrients he needs.

So the big news is that the preliminary results of the MRI are in and its all clear! We have to wait for the "official" results on Monday but his dr. said she see's no change from before, yippee! I was very nervous today, but man yesterday was the worst! I was in such a bad mood all day and felt like I would cry at the drop of a hat. Everything was off...but now I can exhale and enjoy the next three months. I know the next MRI will be even more stressful for me because Ashton will be 4 months out of treatment. This will be big because he won't have the chemo in his system and of course I will be out of my mind with worry. But for now I am so happy.

Also, he didn't get the botox injection in his eye today. The eye dr. came in and said that since he didn't find out the date of the MRI until Monday, it didn't give the insurance enough time to approve it so we will just do it next time. I was a little apprehensive about getting it today anyway. His eye seems to be getting better on its own and it will be better to give him 3 more months to see what happens.

So, great news for now! Ashton continues to get Physical therapy as well as occupational therapy. We will be working on him chewing food again. He seems to be scared of it and hopefully within the next couple of months he will be weaned from the feeding tube all together. Thanks for all the prayers and positive thoughts! Keep them coming please!

Ashton's lumbar puncture was scheduled for this Friday, but that will be put off for a couple of weeks because his platelet count isn't as high as they would like it. I will make sure to update when he has that procedure done and what the results are. Also I will update on Monday when we have the "official" MRI results.

I also wanted to mention that Ashton's little buddy Ty is finally NED after a long journey through treatment! We are so excited for him and his family. But, just like us, they will be watching him closely for any signs of relapse. Just like Ashton's cancer, his can come back at any time which really makes us happy with each and every day we have with our boys. For now though, his family is celebrating just like ours is and in my heart I believe both these boys will live long happy healthy cancer free lives. Go Ty and Ashton!